Anyone who read John's (TheMusicMan) thread on fund raising for Cystic Fibrosis http://www.themouthpiece.com/vb/showthread.php?t=28825 may remember that I mentioned having the disease brought to my attention in a very personal way. At the time my baby daughter, Meghan, was suspected as having CF. We were, initially, given the "all clear" in June this year and breathed a huge sigh of relief. However, our local CF clinic are sensible enough not to rely on the results of one test and we've had loads of different tests done over the last couple of months. 10 days ago, Meghan was confirmed as having the disease and life has taken a new turn for all of us. CF is a progressive disease and we're right a the beginning of it. Even so, at the tender age of just 4 months (tomorrow) Meghan now has to take 4 different drugs and receive regular physiotherapy as she gets older and the disease progresses the prescription list will get longer and longer, possibly including oxygen cylinders and intravenous antibiotics. Despite all of the above, I consider us very lucky to be where we are. Had Meghan been born outside Wales, the blood tests carried out at birth would not have been checked for CF in most health authorities in England and Scotland meaning that the disease is often not picked up until serious lung damage has already occurred. In Wales, we are lucky enough to get all prescriptions free meaning that, when she's older and taking 10-15 different pills we won't be landed with the huge bills that Cystics in the rest of the UK face. Campaigning for, and part funding, proper tests across the whole of the UK is just one function of the Cystic Fibrosis Trust ( www.cftrust.org.uk ) and is one of the reasons that I committed, back in June when we still thought we'd "escaped" to doing my bit. Although CF is the most common inherited disease in the UK, there is still no government funded research into it's treatment or a possible cure. All funding for research, support and testing is provided through the CF trust, a charity wholly supported by voluntary donations. Later on this year, I will be taking part in a Skydive to raise funds and awareness for the Cystic Fibrosis Trust and would ask all tMPers to dig deep and sponsor me. Either through the Just Giving website at www.justgiving.com/piershallihan or PM me for contact details. Thankyou, in advance, on behalf of me, Meghan and the CF trust.